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Eric Dane advocates for re-approval of ALS laws.
On Monday, September 29th, the 52-year-old actor traveled to Washington, D.C., to visit the nonprofit I AM ALS. According to a post shared on social media, staff members Andrea Goodman and Dustin Watson, board member Dan Tate and co-chair of the legislative team Jack Silva — joined Dane at a meeting with Rep. Frank Paron of New Jersey.
In a video of Tiktok shared by US Rep. Eric Swalwell of California, Dane spoke about his ALS journey.
“ALS is the last thing they want to diagnose anyone,” Dane told Democratic politicians. “Very often, it takes so much longer for these people to be diagnosed, and then prevents them from being part of these clinical trials.”
He said, “That’s why ALS’s actions are so great, because it expands access to everyone.”
The actor, who shares his daughters, Billy Beatrice Dane, 15, and 13-year-old Georgia Geraldine with his wife, Rebecca Gayhart, revealed his hopes for the future of his family.
“I have two daughters in my house. I want to see them, you know, you may have graduated from college, married and have grandchildren. You know, I want to be there.
When Swalwell, 44, expressed his support for the ALS defense, he asked Dane if there was anything else he could do. Dane humorously “replenishes the espresso, maybe I’m a bit tired, man.”
I’m ALS/Facebook
On September 15th, the Euphoria star took her to Instagram to reveal her partnership with I Am Als. In the video, he co-signed the group’s new push of progress campaign. This aims to investigate $1 billion over the next three years.
“I’m an actor, my father and I’m Eric, who now lives with ALS,” Dane said. The star was still sitting in the short clip, wearing a shirt with the words “I Am Als.”
“For over a century, ALS has been incurable and has embraced the status quo. We need the fastest path to treatment. That’s why I partnered with ALS on pushing progress. Goal: $1 billion over the next three years.”
“Together, we will update the groundbreaking laws of ALS, provide promising treatment to thousands of patients like me, and finally, pushing towards ending the disease,” he continued, urging his followers to join the cause.
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The ALS law was signed in 2021 and is set to expire in 2026.
“The bill establishes grant programs to address neurodegenerative diseases such as amyotrophic lateral sclerosis (also known as ALS or Lugelig’s disease),” reads the Congressional summary.
Dane exclusively revealed his ALS diagnosis to people in April 2025.